PG Clinic Finder: Search for a Provider Near You
Finding specialized care for Pyoderma Gangrenosum (PG) can be challenging due to its rarity. Our new Clinic Finder tool simplifies this process by providing a national distribution map to help you locate clinics with PG-treating providers across the U.S. Use this resource to connect with experienced healthcare professionals and access the support you need.
What We Do to Support the PG Community
Amplifying Patient Voices
With a broad network of patients and caregivers who are engaged in discussions and willing to share their stories, All Things PG plays a crucial role in advocacy by ensuring that the voices of those affected by PG are heard by researchers, healthcare providers, and policymakers. All Things PG supports these efforts by hosting events and creating tools that empower patients and caregivers to engage in research and public policy, providing perspective and insight into the research and development process for new treatments.
Driving Progress Through Research
All Things PG contributes to research by collecting patient experience data, supporting publications, and creating a “research ready” community for upcoming clinical trials. Patient and family member/caregiver insights can guide the development of therapies tailored to rare disease communities, which might otherwise be overlooked.
Fostering Community and Support
A key part of All Things PG is to connect patients with support groups and resources to address the practical needs and emotional well-being of patients and caregivers. This is especially vital for PG as a rare disease where isolation, lack of information, delays in treatment, and the cost of medical care can lead to despair.
Enhancing Collaboration and Advocacy
Grants and sponsorships enable virtual and in-person meetups and workshops that strengthen our PG advocacy network and foster collaboration among patients, caregivers, and healthcare professionals. These gatherings are essential for sharing knowledge, building community, and advancing collective goals.
PG Patient and Family Advisory Committee (PFAC)
Patient and Family Member Advisory Committees and events empower patients and families by providing crucial resources and understanding for their unique challenges. These meetings will bring together patients, caregivers, providers, researchers and other stakeholders to connect and learn from each other. All are welcome!
